Jordan Anderson Jordan’s Journey

First post: Feb 24, 2023 Latest post: Jul 3, 2023
On February 2nd our world changed forever! Jordan was diagnosed with Ewing Sarcoma, a rare pediatric bone cancer. Only 200 kids are diagnosed a year with this. How did we get to this? Well it’s because of FFA and a shotgun! Jordan is in her senior year at North Callaway Highschool. She decided to join the trap shooting team. She is amazing at target shooting so wanted to give it a try. As the season went on, Jordans right forearm became sore. We just thought it was a sore muscle from all the shooting. It continued to stay sore and then began to hurt when touched. We took her to the doctor, they said it was a strained muscle. By the end of the season it became hard across her forearm. We went back to the doctor where he then decided to order an MRI. In between when the MRI was scheduled her arm became swelled and painful so they sent us to the er. There they did an ultrasound and an xray. They verified that it was a mass with blood flow and not a clot. They gave her pain meds and told us to keep the MRI appointment. The MRI concurred that it was a 5.7cm mass. Our Doctor called and told us it was a sarcoma but not to worry because it looked as though it was growing from the end of a nerve and there was little chance it would be cancerous. He then referred us to a neurosurgeon to have it removed. Once we met with the neurosurgeon he felt it was neurofibromatosis, a fatty tumor condition that is non cancerous and can be reoccurring. He did not feel a need to biopsy ahead of removal as they biopsy it during surgery. January 30th came and it was tumor removal day! We were told it would be about a 2 hour long procedure. If there was an issue and it was attached to the bone, it would be longer but they did not feel that would be the case. Well…. 2 hours passed, then 3, finally 3 and a half hours later the surgeon came out and asked for us to come to a consult room. Bet you can guess what he was about to tell us, it WAS attached to the bone and the muscle! The quick freeze slide also came back inconclusive. So he removed all the tumor they could see but it leaked in her arm so she was going to be admitted overnight to receive iv antibiotics. His face said it all as he talked. The tumor was then sent to pathology for a full evaluation. February 2nd came and I pulled up her pathology results….. SMALL ROUND CELL SARCOMA…EWING SARCOMA. It WAS cancer!! Then the race began to get her into treatment as soon as we could! She was accepted to MD Anderson Children’s Cancer Hospital on February 20th! We flew to Houston Texas and this will be home for the next 6-8 months while she goes through 14 rounds of chemotherapy, radiation and then possibly chemotherapy again. We have faith that God has got us and are so blessed by how he opened the doors for her treatment here. 🎗️❤️🎗️❤️🎗️❤️🎗️❤️🎗️❤️🎗️❤️

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Jordan’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register