Jul 15, 2008 Latest post:
May 25, 2018
Jon was diagnosed with Ewing's Sarcoma in his right tibia in June 2008. It all started about two years ago as pain in his right knee that would come around every couple of months and last for about a week. After many visits to the doctors, he finally got an xray and MRI in May of 2008 and was told that it was a possible tumor on May 17. On May 21, our daughter Emily was born. Jon saw a specialist at the University of Minnesota on May 28 and was told he would have a surgical biopsy and remove the tumor. We were told the specialist was 99% sure this was a benign tumor. On June 16, Jon went into surgery for what we thought was to remove the tumor and fix the bone, but the biopsy in the OR turned out to be cancerous. Jon has had numerous scans, tests, and biopsies and luckily the cancer is only in his right tibia. The plan for treatment is a combination of six chemotherapy drugs and then surgery to fix the bone. Jon cannot go back to work for the entire course of treatment. Life has turned into a roller coaster ride. This is going to be a long year, but Jon is strong. Please keep him in your prayers. We'd love to hear from everyone, so please sign our guestbook. Update 7/15/2010 - Jon finished his chemo treatments on May 5, 2009. He has been cancer free ever since! He had reconstructive surgery on his leg in October 2008 and another in January 2010, his leg is healing fine. Please continue to pray that Jon's scans will continue to come back clear!Love, Sara ReichUpdate:June 1, 2016 - yesterday we received a call on biopsy results that Jon's Ewing's Sarcoma has returned. We will return to treatment at the U of M and beat this again!
Jon started chemo again the end of June 2016. He completed five cycles. He hit his lifetime max of doxorubicin and so it was decided to forego cycle six and move on to surgery. October 16, 2016 Jon had a below knee amputation of his right leg. He handled surgery well. He made his first steps on his prosthetic around the holidays at the end of 2016. He completed two additional cycles of chemo in January 2017. It was then decided that Jon had had enough chemo as there was no data to go off of as to whether it would be helpful or harmful to continue with chemo. Jon had a clear PET scan in march 2017. He had an addition surgery on may 18, 2017 to fix a raised area on his kneecap that was causing pain with his prosthetic. October 9, 2017 Jon had yet another surgery to reshape the remaining tibia bone which developed a sharp ridge to it, causing recurring sores when wearing his prosthetic. He was having issues with sores for the entire summer and fall. The surgery has helped to relieve this issue to date.