Jonathan David Mayers

First post: Apr 9, 2016 Latest post: Dec 29, 2022
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Dear Friends and Family, 
I have tried to localize a place where I can write to keep everyone updated on our Jonathan. This has been a whirlwind of an experience. In February 2016, Jonathan felt aching above his teeth on his right side; so he thought perhaps he had trouble in the roots of his teeth.  Went to dentist who declared he had sinus infection. He then went to his primary Dr who gave him a subscription for sinus infections. However, on March 9th, two weeks later, Jon had a small bump the size of a marble on the back of his skull on the right side. Dr. tried to drain it. Nothing would drain so he was referred to a specialist to see if it was an infection. But another visit to the Dr. on March 30th showed the tumor had grown to the size of a soft ball which caused them to order a cat scan which revealed on March 31st that Jon had also a tumor on the inside of his skull and it was growing at the rate of the outside one.  We were in shock as we never thought of one being on the inside of the skull. April 6th we went to meet with the brain surgeon who revealed to us that there was more cancer inside the body. Also growing at the same rate as the tumor in his head. Thursday they successfully removed the tumors from his skull. Took out the infected skull bone and replaced it with a permanent plastic like structure to cover the brain. His skull looks perfect and after the scar heals should not be too noticeable. He is healing from that operation and we were impressed to witness him walking out of the hospital less than 24 hours after brain surgery.  Yesterday he went on a 45 minute walk around our neighborhood.  He will go see specialist again April 13th and have the staples removed April 14th. The tumors are being reviewed to determine the sort of cancer. Also Jon donated the tumors to science research so they could study the tumor as it is so rare. He will have to undergo some form of cancer treatment. We are not sure what that will look like yet. But I will keep everyone posted as to how we proceed. 
Thank you for you support, love and well wishes. Mayers Strong 
Updates Jon has been diagnosised with Ewing Sarcoma. An extremely rare form of cancer that generally develops in young children. For this form of disease he is an old patient. He will be treated in Children's Hospital starting Tuesday April 26. We hope to get a place secured in Ronald Mc Donald housing. 

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