Jonah Pfennigs

First post: 10/26/2013 Latest post: 8/29/2017
Jonah was diagnosed with Acute Myelogenous Leukemia on July 16, 2002, six days before his third birthday. A bone marrow transplant from his brother, Sam, Halloween that same year blessed our family with almost 11 cancer-free years.

October 25, 2013, Jonah relapsed with the same cancer almost 11 years to the day of his transplant. February 10, 2014, he received stem cells from Emma and is now recovering with the hope that he can beat this disease for good this time.  I would have never thought I'd say these words, but toddlerhood cancer was much kinder to Jonah.  He avoided pretty much every side effect and really never even threw up from the chemo.  He did vomit once after surgery when he inhaled everything on his tray, but his dad was right  there for it to land on.  :-)  This go around, Jonah has had pretty much every complication he could have, GVH, AVN bilateral shoulders, hips, knees, and ankles.  He had a horrible time with BK virus and had to be hospitalized. There is also an amazing massage chair, picture the Captain's chair on the Enterprise from Sam's Godfather, Tom and his boss.  So Jonah continues his fight. Right now, March 2015, he's still waiting for the green light for sushi and raw oysters. He's out of the wheelchair and most of the lower extremity pain is gone.  He's awaiting surgery on his shoulders and really wore those arms out with wheelchair transfers and stair scooting. This past month, Jonah was also diagnosed with insulin dependent diabetes.  He's taking that like the super trooper he is and was giving his own shots by day 2. His teeth are ALL also a mess from the chemo and are going to require hospital level surgery, as we can afford it. Dental insurance pretty well stinks even when you think it's a good policy.  I'll keep the updates going on this site. Thanks for all of your support, especially those of you who are doing that Spy-vs-Spy secret gifting so I can't thank you, but THANK YOU anyway.  And a special thank you to J.C. "Pit" Martin, attorney, and his family, for their assistance and support. Navigating the difficulties in our family right now really did require everyone's help, thoughts, and prayers.

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Jonah’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register