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Oct 28, 2016 Latest post:
Feb 6, 2017
Jole was born June 2008 a healthy baby boy.within the first two years of his life we noticed developmental delays and he began falling all the time he was admitted into the hospital for almost two weeks while he was tested for over 4000 different illnesses he tested neg for all and left doctors baffled two years later we finally got an answer after an mri showed iron accumulated on his brain he was diagnosed with INAD its very rare and its terminal.The day we recieved the news was the hardest day as a family we have ever gone through.But Jole fills us with such joy he brings light with his smile and happiness even though he endures so much he remains happy hes an inspiration to anyone whos got to know him. My baby my boy youll never know just how precious you are.