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7/28/2016 Latest post:
Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.
Our newborn, John Jerome, was admitted to Children's hospital early this morning. John was born on July 21st, 2016 at 7:13 PM. He was 7 pounds 4 ounces and he was 20.5 inches long. After laboring for 23 hours, he wasn't coming naturally so John was born via c-section. We left the hospital Sunday with a happy healthy baby who was eagerly breast feeding. We were so proud. Over then next few days he grew lethargic and at times became fussy. After numerous trips to the clinic and pharmacy we thought he had colic or indigestion and would just be something that would pass. He started showing less fussiness when changing diapers and became even more lethargic. We were concerned he had something more serious going on so we brought him into the ER Wednesday night and our world was turned upside down.
He was experiencing a variety of odd symptoms (straining his face, tensing up, twitching) on Wednesday evening so we decided to take him in to the ER to have him looked at. The doctors determined he was having seizures and his temperature was lower than it should be and he wasn't responding normally to stimuli. They ended up sending him by ambulance and the severity of the situation set in. There are still some test results we are waiting on, but what we do know for sure is that he has a brain hemorrhage. There is blood in the ventricles and on part of the right side of the brain.
The plan as of now is to patiently wait and see if it heals on its own. He will be monitored closely for a suggested couple of weeks. During that time doctors will make sure the bleed does not increase in volume and have a plan of action if it does.
As you can imagine, we are flooded with emotions and our hearts are aching as we experience this, especially as first time parents. We are so grateful for all the prayers and support!! Our prayer is that his little body is able to heal on its own and that the bleeding does not cause any long term effects regarding his cognitive and motor development. We were told that is a possibility and something we will just have to wait and see about.