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January 20th I took Johnny in for an endoscopy. The doctor told us he found a "huge tumor". He thought it may have spread to his liver. He had a CT scan the next day and it confirmed that it had, indeed, spread to his liver, making it stage IV We met with Dr. Modi, an oncologist who specializing in this type of cancer. He told us it was inoperable and incurable. He hopes with chemo that he can "manage" it. That means he hopes it will slow the progression. Johnny then went for a PET scan and it showed, not only is it in the liver, it had also spread to the bone. Not the result we wanted.
Since then, he has had chemo every 3 weeks. The second PET scan showed dramatic improvement. It is still present in the liver, but the liver is normal size and his liver blood tests were pretty close to normal. The primary site in the esophagus is smaller and so is the spot in the bone. He will have another scan mid June. We are praying for more dramatic improvement! He is able to eat with less difficulty, but does fight nausea frequently. Right now, he is weak and sleeps a lot. His HGB and platelets are low. They are going to start him on Erythropoietin to stimulate blood cell production in the bones. Please keep us in your prayers. I feel this is going to be a long, sometimes difficult, journey for our family.