May 23, 2018 Latest post:
Jul 30, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
John was diagnosed with an Oligioastrocytoma(brain tumor) in July 2011. He underwent surgery and whole brain radiation at that time. The tumors were stable, meaning no new change in size or shape, until October 2017 when his MRI revealed all 3 existing tumors were growing. They also had created their own blood supplies and a new tumor was spotted. The new tumor was located in the left side of his brain that controls movement on the right side of his body. In order to prevent total paralysis on John’s right side, we chose to start chemo in November 2017. His first MRI since chemo started was in January 2018 and it revealed no new growth on the 3 pre-existing tumors, but something possibly concerning on the new tumor. We chose to continue chemo. His last MRI, taken in May 2018 showed that this new 4th tumor was growing rapidly since January and was over a half an inch larger in size.
Chemo is not working. Our Oncology team in the Twin Cities feels it is best to transfer his care back to the Mayo Clinic. The Oncology team feels this new rapid tumor growth is “highly concerning” and they also feel he is “nearing the end” of his battle. The Mayo team has decided it would be best to start a new pill form of chemo to help slow down the tumor growth and the decline of his health. This is not a cure but an attempt to slow down the physical and emotional side effect challenges the tumors are presenting.
Please keep us in your thoughts and prayers during this difficult time.