Johanna Mitchell

First post: Sep 2, 2017 Latest post: Apr 5, 2018
Dear ones,
     On March 1, 2018 I met with Dr. Kim Goslin (my bodhisattva neurologist) at Providence Neurology in Portland, OR. Dr. Kim ran a bunch more tests and concluded that my nerve difficulties are progressing and are now in line with ALS, albeit a slowly-progressing form. I have an all day clinic appointment on April 9th where we will learn more about the diagnosis and available resources. Her team is amazing and I absolutely know I am in the best hands.
    If you would like to help, and you live nearby, we have entered a few times in the calendar for assisting with household chores etc. If you don't live near me, I would appreciate cards and texts and photos of you and your loved ones to brighten my day. We will add more to the calendar soon.
    At the upcoming appointment, I will have an important pulmonary test that will qualify me for the new IV drug that has been approved. Send me lots of healing energy that I may pass that test! I am also collecting alternative words for the acronym als e.g. Always Loving Splendidly, to use in my art journal.
    I may not always have energy to respond to every text, email or card but please know that I love and appreciate you all. Check back to this site for updates and to leave me messages.
Most sincerely,
Johanna

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Johanna’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register
SVG_Icons_Back_To_Top
Top