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Sep 2, 2017 Latest post:
May 16, 2018
Dear ones, On March 1, 2018 I met with Dr. Kim Goslin (my bodhisattva neurologist) at Providence Neurology in Portland, OR. Dr. Kim ran a bunch more tests and concluded that my nerve difficulties are progressing and are now in line with ALS, albeit a slowly-progressing form. I have an all day clinic appointment on April 9th where we will learn more about the diagnosis and available resources. Her team is amazing and I absolutely know I am in the best hands. If you would like to help, and you live nearby, we have entered a few times in the calendar for assisting with household chores etc. If you don't live near me, I would appreciate cards and texts and photos of you and your loved ones to brighten my day. We will add more to the calendar soon. At the upcoming appointment, I will have an important pulmonary test that will qualify me for the new IV drug that has been approved. Send me lots of healing energy that I may pass that test! I am also collecting alternative words for the acronym als e.g. Always Loving Splendidly, to use in my art journal. I may not always have energy to respond to every text, email or card but please know that I love and appreciate you all. Check back to this site for updates and to leave me messages. Most sincerely, Johanna