Joe Bell

First post: May 8, 2024 Latest post: May 17, 2024
Joe has a disease called Dyskeratosis Congenita which we discovered when both kids were diagnosed 11 years ago. The kids had bone marrow transplants at Cincinnati Childrens and are currently doing well. Cancer, lung and liver issues are prominent with TERT mutation. Joe also had Non Hodgkin Lymphoma in 2014 and has been in remission since.

He was diagnosed with pulmonary fibrosis in 2020 and had a double lung transplant in July 2022. He has had a lot of ups and downs with his health since then.

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