Jenna Louise was born with a rare craniofacial disorder where the bones in the head fuse prematurely. Surgery is often required to expand the skull and face. This causes a lot of problems as the head and face continue to grow. If this goes untreated it could opens the future to a lot of problems with brain growth, loss of vision, hearing and breathing issues.
Jenna has 2 surgery’s already planned before she turns 1. She may need more surgeries after that by the way her head develops. Jenna isn’t the only one this has happened to because this condition is caused by a genetic mutation it has a 50/50 chance. Her mother Sarah was born with this condition as well as her Grandma and aunt and cousin. It seems to jump every other as Sarah has an older sister and her own first born son that neither have shown any signs of the mutation. As her aunt has it also where her oldest child doesn’t but her daughter did as well.
Please keep Jenna and her family in your thoughts and prayers as she starts this journey to becoming a beautiful Adventurous little girl that lets nothing get in her way.