jim bier jim bier Lyme's and ALS?

First post: Jul 18, 2021 Latest post: Oct 4, 2021
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I have a diagnosis of Lyme's Disease and co-infections, as well as ALS, ALS doesn't have definitive tests, and is the best from my neurologist for my symptomology.  I have unexplained 20 lb weight loss over the last 7 months along with some neurological issues. After a cardiac blockage 12/2019, I went on a vegan diet and as expected lost 25 lbs over 6 months. Weight stabilized at 145 from June to December 2020. At that time some weakness and loss of stamina became noticeable in my exercise program. I mentioned this to my docs over the next few months as neurological symptoms also crept in affecting hand muscle strength and swallowing. Their advice was to eat more and also enrolled me in many tests and scans which pretty much showed me to be pretty healthy. An extensive panel of tests in early June revealed Lyme's disease and possible mold allergy. Lyme's disease was confirmed with co-infections recently with another battery of tests. Within a few days of doxycycline therapy the swallowing/choking issues were resolving. The confirming tests of coinfections led to switching from doxycycline to PICC line and daily home infusion of Rocephin with a couple of other antibiotics orally. Also taking adjuvants to duck some potential problematic side effects of antibiotics. My adult children, Jessica, a CSA gardener and group home care-giver from Pound, VA, Jonathan, a Park worker from Olympia National Park in Washington, and Sara, a geology professor with two daughters living in Colton, NY provided care and maintenance in the difficult period of scary swallowing/choking issues. My Joanne is in the midst of moving from her mountainside home of 28 years to a patio home in town, yet has provided much of the infusions. My neighbor couple, Rachel and Emily,  have been very supportive with Rachel mowing as well as some infusion support. I am appreciating the prayers and support of my church communities, St. Peter's in Callaway, and Our Lady of Nazareth in Roanoke. This Caring Bridge Journal is to facilitate those interested in keeping up with this health saga. 

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