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I was recently diagnosed with Moyamoya on May 18, 2018 and it has been a whirlwind since then. I had never heard of Moyamoya and had to Google it! Moyamoya disease is a rare, progressive cerebrovascular disorder caused by blocked arteries at the base of the brain in an area called the basal ganglia. The name “moyamoya ” means “puff of smoke” in Japanese and describes the look of the tangle of tiny vessels formed to compensate for the blockage. No medication can stop or reverse the progression of this disease. Treatment focuses on reducing the risk of stroke and restoring blood flow to the brain.
I am scheduled to have surgery on July 25th at Stanford Health Care Hospital.