Nov 20, 2016 Latest post:
Nov 10, 2017
Welcome to Jeremy's (CJ's) CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. We also appreciate your prayers.
On November 14, 2016, Jeremy went to the emergency room on advice of the doctor, as he had lung/chest pain, shortness of breath and diminished breath sounds on his right side. The doctors in the ER took a chest X-ray and initially thought he had pneumonia. Over the course of the next few hours, he was admitted, and the following day we were told he had a mediastinal mass in his chest with pleural effusion (fluid in the pleural cavity). He had numerous tests and was sent home two days later pending results.
Later that week, in the early hours of November 19th, he had significant pain in his chest and back and we took him to the emergency room at Mission Hospital. Within 8 hours, the doctors had obtained the records from the prior hospital and given us a diagnosis of lymphoma. He was admitted and his case referred to an oncologist from the hospital. The oncologist came in on a Saturday, reviewed the test results and pathology from the other hospital and told us that Jeremy had a rare form of non-Hodgkin lymphoma called T Cell Lymphoblastic Lymphoma. He said the mass in his chest was a collection of inflamed lymph tissue and it was pressing on his lung, among other structures and causing a build up of fluid as well as causing an inability for the lung to fill with air. He told us that Jeremy's type of cancer needed to be treated at a university/research hospital, and that he would be working to see where he could be transferred. Options were USC, UCLA, UCI and City of Hope.
The following day, we were informed that City of Hope had accepted him, and as soon as a bed became available he would be transferred. In the meantime they performed several tests that they knew City of Hope would need to diagnose and treat Jeremy's lymphoma.
On November 23rd, Thanksgiving Eve, Jeremy was transferred to City of Hope. Because it was a holiday weekend, not much happened other than pain control, a thoracentesis to drain his pleural fluid and rest. Eventually, the doctors started ordering more tests and reviewing pathology from the other two hospitals. On Wednesday, November 30th, we were told that Jeremy was being transferred to the pediatric unit, where a doctor who specializes in pediatric lymphoma would be caring for him. This type of cancer is more common in kids, and adults do well on the pediatric protocol. By Thursday, December 1st, Jeremy was undergoing his first of many chemotherapy treatments. He now has a team of professionals including a primary oncologist/hematologist, a nurse practitioner, a social worker and a chemotherapy/treatment nurse at his beck and call. That's in addition to the many nurses, techs and others at the City of Hope that have welcomed us, taken care of us and provided care to Jeremy.
We will update this site as we have more information, and post to social media when we do. You can also subscribe to Caring Bridge and get updates by email when they are posted.