First post:
Jun 24, 2017 Latest post:
Nov 19, 2020
Greetings, and welcome to our CaringBridge site! We decided to form this site to keep family & friends updated on our heath adventures.
Just after we were married, in 2005, I was diagnosed with several blood clotting disorders after suffering a pulmonary embolism (blood clot in my lung) and a stroke. When my health started deteriorating rapidly in 2013, we sought guidance from Cleveland Clinic.
In 2017, I was diagnosed with Bechet's Syndrome when I began to experience double vision and was unable to read. I was started on a medication to decrease the inflammation in the back of my eye.
In December of 2018, I was started on a life-long immunosuppressant called Humira to treat the Bechet’s. I continue to take life-long blood thinners to prevent any more dangerous blood clots from forming in my lungs, organs, and brain.
In January 2019, our sweet boy, Dominic had a strange presentation for appendicitis-and continued to struggle with high fevers and abnormal lab values. There is concern that he could have a genetic condition related to Bechet’s.
Our life is certainly very interesting, unpredictable, and sometimes quite harrowing -but through it all, Christ walks right beside us-sustaining and upholding us.
We are blessed beyond measure with a strong marriage, our three wonderful children, and amazingly supportive family and friends.
Thank you so much for your prayers and support-they mean the world to us! Please continue to keep us in your prayers as we venture forward.
"Having faith does not mean having no difficulties, but having the strength to face them; knowing we are not alone". -Pope Francis
CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.