Jennie Gappa | CaringBridge

Jennie Gappa

First post: May 27, 2017 Latest post: Jan 6, 2018

If you're looking for a way to help out beyond prayers and positive energy (the best!), the following link is an easy way to donate to the fund which helps with medical bills, treatment travel costs, and costs of living with Jennie not being able to work for at least 6 months.

4/29/17: Jennie began having worrisome symptoms of severe tingling and itching all over her arms and legs. This progressed to accompanying warmth sensations.
5/1/17: Began doctoring locally over the next couple weeks. Blood tests to rule out autoimmune conditions, thyroid conditions, Lyme's Disease, and other obvious culprits.
5/24/17: MRI of head and neck done to rule out MS. MRI showed brain tumor at the back of the head (most likely meningioma), but more concerning was the top of a large tumor visualized at the base of the neck scan.
5/25/17: CT scan of the chest revealed a very large (greater than the size of a softball) tumor surrounding the greater vessels leading into the heart, as well as the trachea
5/26/17: Began doctoring in Rochester with hematologist Dr. Ansell. Suspected Hodgkin Lymphoma due to the classic sign of itching. 
5/30/17: PET scan revealed large mediastinal tumor, as well as several smaller tumors surrounding it in the chest cavity.  No metastases to the rest of the body.
5/30/17: Bone marrow biopsy. 48 hours later revealed no involvement of bone marrow with lymphoma. 
5/31/17: CT guided needle biopsy of tumor.  48 hours later revealed diagnosis of Classic Hodgkin's Lymphoma
5/31/17: Baseline echo showed no compromise of heart function. 
6/1/17: Baseline pulmonary function tests showed no compromise of lung function.
6/2/17: Neurology consult regarding brain tumor.  Follow up MRI. Discussion of tumor removal following chemo and radiation.
6/2/17: Fertility consult. Discussed preservation of eggs for infertility concerns following chemo. Decided against this for financial reasons.
6/2/17: Received concrete DIAGNOSIS, based on all above tests and blood work, of Stage 2B Hodgkin's Lymphoma. 
6/4/17: Hair chop--hair sent off to be made into a personalized wig! 
6/7/17: Chemo round 1. ("ABVD") Side note, anyone who follows Dad's story... We later found out we both started chemo on June 7, exactly 7 years apart. 
6/22/17: Chemo round 2.
6/25/17: Hair buzz. Hair falling out EVERYWHERE. 
7/6/17: Chemo round 3. 
7/20/17: Chemo round 4. 
8/3/17: PET scan & Chemo round 5. 
8/17/17: Chemo round 6.
8/31/17: Chemo round 7. 
9/13/17: Chemo round 8.
10/9 - 10/27/17: Daily proton beam radiation.
11/14/17: Meningioma removal surgery.
12/12/17: PET scan & REMISSION!

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