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Chad and I are overwhelmed and in shock yet about our baby Jeff. Last night Jeff was diagnosed with Leukemia. We have a long road ahead but need one spot to keep people updated about our little man. I will add more to our story when I feel that I can grasp the news better. At this time we need prayers!
Jeff has been making me nervous well since I had him! However, after we got through the NICU I was more nervous about RSV than about anything. We don't take him many places and tried to protect him as best as we could. We limited church and outings just to keep less germs around him....about 9'days ago I was just noticing different things going on....I thought well we see Candice his pediatrician Thursday so we will tell her. (With six kids you get to be calm and don't run to the dr first thing because I'd live there.). Different things kept happening and I'd say well we go to Candice Thursday. I noticed he was getting pale, very pale....I told my mom Saturday he makes me nervous it doesn't feel right...but we go to Candice Thursday. Tuesday the kids went to Lauries while we were at work. When I picked the kids up she said he didn't feel well just wasn't himself. The minute I looked at him something in my brain said Meg you have to call the Dr. The nurse said you could take him in get him checked out maybe he has an ear infection since he was kind of uncomfortable, otherwise we will see you Thursday. Mom instinct said Meg get him to the Dr. I took him to urgent care, sat in a germ infested waiting room for an hour and then they took us back. The wonderful nurse new right away something was wrong. She grabbed the pediatrician and said you need to see him. We are not seeing the urgent Dr because she has a cold. Things happened so fast. Soon we were in the ambulance to go across town to the ER to get stabilized and sent by ambulance to s.f. They did blood work and the dr in the ER said I don't want to scare you but when I see numbers and things like this I think leukemia...I'm like oh ok.,...off we go....small talk with amazing paramedics and EMTs from Worthington all the way to Sioux Falls....I'm thinking some vitamin D some iron we will be ok! I follow the stretcher into the PICU chad is parking the suburban two guys meet me in the doorway introduce themselves as Dr. Sam and Dr. Hsu we have looked at your babies blood counts and X-rays and "Your baby has Leukemia."
"My husband isn't here yet."
Chad arrives they tell him the same thing.
Crazy chaos and talking for hours. Get some rest.
It's Wednesday 4:35 am I wake up....crap it's not a dream it's a living nightmare!
I still feel this way. I just keep thinking I'm going to wake up.
Thursday at 11:00 he is having a spinal tap and a central line placed. This will help with all the blood draws and administering of meds.