12/2013 - After suffering general confusion, memory problems and some balance issues, Janelle was diagnosed with "Primary Central Nervous System Diffuse Large B-cell Non-Hodgkin Lymphoma" (PCNS DLBC NHL). After 5 rounds of Methotrexate chemotherapy, on 3/31/14 she was in complete remission (AKA - no evidence of disease (NED)).
3/2017 - The cancer returned destroying the auditory nerve in her right ear. After 13 rounds of chemo it was deemed that she was again in complete remission. She had an autologous stem cell transplant at the Mayo Clinic in Scottsdale AZ 11/2017 through 1/2018 in an attempt to completely eradicate the cancer.
4/2018 - A tumor about the size of a pencil eraser was noticed behind her left eye during her first MRI after the transplant. She was accepted into a CAR T-cell clinical trial at City of Hope (COH) in Duarte CA. After 6 rounds of chemo she started the CAR T-cell process (some cancer was still present). An MRI on 9/11/18 showed NED/complete remission.
6/2019 - Janelle started to have visual disturbances including double vision and trouble focusing after turning her head. An MRI showed that the cancer had returned. After 7 rounds of chemo, an MRI on 9/24/19 showed NED/complete remission. She started daily Revlimid maintenance chemo (3 weeks on and 1 week off) with a Rituxan infusion once a month.
3/9/2020 - After having vision problems (that entirely went away and then came back) and then balance problems, an MRI showed new cancer (an MRI on 1/2020 had showed all clear). . .
This site will be used to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.