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Feb 28, 2018 Latest post:
Mar 9, 2018
*******Please click on "ways to help and scroll down to planner.." That's where the calendar and sign-up sheet is for help. ******** Below is an introduction Jamie's health. Jamie lives with atypical CIDP (Chronic Inflammatory Demyelinating Polyradiculoneuropathy). Since the onset in March 2016, she has lost sensation and reflexes in her lower limbs and it is moving up her arms and legs. CIDP is a rare autoimmune and neuromuscular disease It's often described as the chronic version of Guillaine Barre and looks similar to primary progressive MS. It has advanced and not responded positively to treatments. From a medical perspective, the goal is to conserve energy, slow the progression, and reach for quality of life. Jamie uses a power wheelchair and has braces and forearm crutches to help with movement. She's hanging tough and often uses the hashtag #sickfightsback. The one thing that is statistically significant is that Jamie's vitals are always better after she has heard from or shared time with others. With that, this site is set up to help Jamie fight back. It takes a village. Let's do this.