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Feb 4, 2019 Latest post:
Sep 17, 2020
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. It can get difficult to try and update everyone and remember who I have told what to - this just makes it easier for our family.
James was diagnosed in January 2019 with stage IV GIST (gastrointestinal stromal tumour). Gastrointestinal stromal tumors (GISTs) are uncommon tumors of the digestive (gastrointestinal; GI) tract. More than half of GISTs start in the muscular wall of the stomach; most others are in the small intestine; rarely, GISTs are found at other GI sites. GISTs aren’t the same as other, more common GI tract cancers. GIST strikes randomly. They don’t know of any “lifestyle” factors, such as diet, place of residence, occupation, or chemical exposures that cause GIST. In short – getting GIST was not anyone’s fault and there should not be any feelings of shame or guilt about having the condition.GISTs are rare. James’ type is aggressive and has metastasized- they say he is inoperable and have given a prognosis of 2 years - we are taking it one scan at a time and one day at a time and trying to live in the moment!