Oct 14, 2019 Latest post:
Mar 23, 2020
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Jakob as a 10 year old very energetic boy who is in the fifth grade an is in middle School when Jakob was in the second grade I knew something was wrong, I actually felt something wasn't right when he was about three or four years old and he stayed thirsty all the time more so than my other children I was hoping that he would not grow up to be a diabetic like my parents but instead as he got older the symptoms and things about him has changed even more so as he got older I noticed when he was in the third and fourth grade that things weren't that great and the second grade things were about time that I needed to get some answers so we started going to different doctors and specialists between him passing out having headaches and stomach cramping I just knew something wasn't right along with his asthma and the ADHD problems that he was having we went to several doctors for about a year to two years before we was able to receive an answer one day Jakob even passed out at church and when he came to he could not speak to any of us to tell us what was going on with him we possibly thought he was having seizures but it was not seizures, as time went on I knew that things had to be checked out and Jacob was diagnosed at East Tennessee hospital children's Hospital with dysautonomia it is an anatomic nervous system disease, and it can make people appear on the outside well but on the inside they are really sick and deal with different problems every day making it hard for them to do simple tasks having brain fog forgetfulness migraines pains in their body weakness fatigue tiredness racing heart dropping blood pressure and passing out dizzy spells as well along with other symptoms such as not being able to sleep eating problems, and very easy to suffer with severe dehydration and their sodium also drops and the list goes on, so I created this site for us to be able to communicate with family and friends throughout Jakob's journey there is no cure for his disease only hope that he can grow out of it but that is not even a guaranteethank you all for visiting our website and I hope that you keep in contact with leaving comments and encouragement for Jakob as much as possible.