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After many nights of Jaidyn waking up, screaming with leg pain, she was eventually taken into the hospital. There they took an X-ray. After results from this they were sent home with no abnormal readings. A week went by and nothing was getting better. Jaidyn was still waking up with left leg pain and she also started to limp. Her mom and dad knew something was just not right. So they took her in again, This appointment was December 8th, 2017. Here they completed blood work, another X-ray, and an MRI. They found abnormalities in her left leg bone and into the pelvis along with a tumor. The doctors thought it was a possible cancer issue. They were then sent to Mayo on Dec 10th for appointments starting on Dec 11th. Little did we know this would be a longer journey then we have ever imagined. Jaidyn hung tough while she was poked, prodded, and biopsied. After all the waiting, stress, sadness, and hope, there was finally an answer.
Jaidyn was diagnosed on Wed Dec 13th, with High Risk LCH. It is located in her pelvic bone, leg, lymph nodes, and spleen. Typically children diagnosed with this type of cancer have a 90% survival rate. If it has organ involvement, their prognosis goes down to 70%, which is the category Jaidyn was out in due to her organ involvement. She has many more tests, chemo, other treatments, and a long road ahead of her. We all hope for a fast recovery and that Jaidyn's disease responds to the treatments fast. Doctors say she will be doing chemo once a week along with other oral medications for a year. Her treatment regimen will vary depending on how she reacts to treatments. Jaidyn has a port for her chemo, blood work and other infusions, she is on prednisone, tummy meds and anabiotic‘s as a weekly routine.
Jaidyn started having an issue with her jaw so mommy and daddy took her in and found out her port had slipped and were touching her nerves that controlled this part of her body which was eventually found to be causing these symptoms, so there again she was in surgery. After that surgery they decided to change her chemo from in the port once weekly to once every third week. She now takes a chemo pill every night at 7 PM along with her routine of prednisone , tummy medicine, and anabiotic. Thank you to the good Lord she tolerates it all quite well. She has fevers that fluctuate quite often along with her blood counts. This latest check-up she had was great! AMEN!! (At least she’s not sick feeling.)
She’s got a little brother she’s got to keep up to and she does a great job of doing that, she loves playing with her brother very much.
She’s very excited she was granted her Make-A-Wish. Our little lady and her family will be going to Disney World in May 2019.
As appointments come and go, we will keep our site updated.
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