Pictures were taken May 6th. Last time I took pics of her with the good camera in my home studio.

Jadyn Nelson Jadyn's Journey

Latest post: 1/11/2014
 

Jadyn has a very rare vascular anomaly MLT. Lesions in her GI tract cause massive hemorrhaging. There have been twenty or more confirmed cases of MLT worldwide.

Donations Can Be Sent To: Midland States Bank, In Care of Jadyn Nelson Benefit, 133 West Jefferson, Effingham, IL 62401 



Updated- May 2009 

 Jadyn was born on September 7, 2006. She was transferred to St. Louis and spent the first 8 weeks of her life there.
Jadyn has a very rare vascular anomaly
Multifocal Lymphangioendotheliomatosis with Thrombocytopenia (MLT). There have been twenty or more confirmed cases of MLT worldwide, also known as CVAT. Jadyn's lesions are located in her GI tract, and frequently cause massive hemorrhaging.

 On December 13, 2006, she was air lifted to St. John's Mercy Medical Center in St. Louis, MO. Jadyn was in respiratory distress, and it was found out later that she had pneumonia. On December 14, 2006 Jadyn had the highest co2 level ever (216) at St. John's Mercy Medical Center. She did not open her eyes for six days. I didn't get to hold her for nine days. After three weeks in the hospital, she was able to return home. Jadyn has come close to losing her life several times since she was born.  

 God has performed many miracles for Jadyn. The efforts of the Doctors, Nurses and Therapists that God has brought and continues to bring to help Jadyn, will always be appreciated and never be forgotten. Jadyn would no longer be with us without all of their time, love and dedication towards Jadyn. 

 Jadyn has endured massive hemorrhaging, and because of this she has had over 200 blood transfusions. She has had infections in her mediport-blood. She has also had a pneumothorax, pneumonia, two bowel perforations within six days of each other. She has had an ileostomy since August 2007 because they removed her entire right colon. She has had nine surgeries. She has been in a drug induced coma, been on a ventilator several times and has endured several drug withdrawals. She has been air lifted in a helicopter six times and taken by ambulance more than three times to St. John’s Mercy Medical Center. She was on chemotherapy every two weeks for ten months and has been on steroids most of her life. She was able to be taken off the steroids in March 2009. Jadyn has spent many months of her life in the hospital. I would say she has spent almost a year of her life in the hospital. Jadyn has only been home maybe a total of two weeks this year. She has had two major stomach surgeries to try to remove the hemorrhaging lesions. The surgeries didn't put a stop to the life threatening hemorrhaging. Jadyn's doctors think there are new lesions in her stomach. They are now trying other drug options to save Jadyn's life. Despite all of what she has been through, she loves life and has a sweet and sassy personality as big as this world! She is amazing! She is our little miracle baby over and over again! She is truly a Beautiful Angel sent from God.


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