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Jun 29, 2018 Latest post:
May 16, 2020
Jaden was diagnosed at age 4 with Hypertrophic Cardiomyopathy during a routine preschool check-up. Hypertrophic Cardiomyopathy (HCM) is a thickening in the heart muscle (usually located in the left ventricle) which affects the blood flow to the heart. It is usually considered genetic, however, we have not confirmed it anywhere in our family yet. Jaden was initially diagnosed by Dr. Chandramouli at Pediatric Cardiology in Des Moines . In 2008 we decided to get a second opinion at the University of Iowa where the same diagnosis was confirmed . In 2013, we decided to bring Jaden to Mayo Clinic in Rochester because they are considered a center of Excellence for this disease and have an actual HCM clinic. From 2014 until now he has been followed by Dr. Erik Edens at the U of Iowa. We recently we received a letter informing us that he would be leaving the U of I so we decided to bring Jaden back to Mayo for his yearly check up and see Dr. Michael Ackerman. He is a doctor that has spent a lot of time studying HCM and the genetics involved with the disease. He has also spent a lot of time assessing the risk of sudden cardiac death in children. We were seen by him on May 30th to find out that Jaden's disease has progressed enough to need surgical intervention.