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3/2/2016 Latest post:
Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most. Jacob's story started when he was 3-that was his first seizure. It sure was a doozy. A trip to Cincinnati Childrens ER by squad, mind you I was already at the hospital with Jordan he was sick and admitted. Jacob was with my Mom. Back then we didn't have the Liberty Campus. He was unconscious they sent 2 chaplains to be with his Dad and I. They said he is very unstable and were not sure how to fix him. Well, for my God fearing friends, at this point I had to go tell my mom who was with Jordan that things were looking bad. While on my way there, I prayed and I prayed hard and all of a sudden the strangest kind of calm came over me. Moving forward he ended up in ICU and was completely back to normal within a couple hours. A few weeks later had a staring episode we seen a neurologist and he was put on seizure meds. All the way up until 2 years ago he would one or two a year we would contact the Dr and they would increase his meds or if he was maxed out on that drug start a new one. Really his seizures was not a issue. We considered him typical they were so irrelevant. 2 years ago that was not the case maxed out on 3 drugs, 3 admissions to the hospital, a concussion, so many seizures I lost count we started the ketogenic diet. At first for about 9 months it worked, then we had a rough patch, then it worked again for about 6 months, then another rough patch, then worked again for about 4 months and then we hit a brick wall. Nothing seemed to be working. Our current Dr really seemed to not have much more to offer. Jacob's life was turned upside down seizures daily sometimes just a few sometimes again too many to count. All along he has been a trooper. His faith has carried him through that's for sure. I'm not so sure that I could have had the same attitude and endurance that he has had. That's how we landed here at Cleveland Clinic. I did some research and found Dr Wyllie. She is fabulous. We met with her and she said "well, this has gone on too long and the good news is I can fix you!" So that's the short of a much more involved, tough couple of years, but it gives you the idea!