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1/10/2017 Latest post:
Hello everyone! Thank you for visiting our dad's site.
Throughout the years we've tried hard to keep everyone updated on his health, this will allow us to give more details along his journey. Please note we are not looking for any donations. We just created this site to inform out family and friends of our father's progress.
Timeline of events:
November 2009- Our dad went to see a new heart doctor after his previous heart doctor passed away. The new heart doctor sent him for a chest x-ray, which he found the mass on his lung.
December 2009- During surgery they preformed a biopsy of mass and it came back as cancerous. The doctor decided because the mass was located in his right upper lobe they were going to remove the whole lobe of his lung.
January 2010- He started 4 rounds of Chemo as a precautionary measure.
August 6, 2013- Our dad had a Grand Mal seizure while at work. This led to the doctors discovering a tumor in his brain that had exploded causing the seizure. We decided to take him to Sloan Kettering Cancer Hospital, New York City, NY. We knew our dad was in good hands when the chief of neurosurgery took on his case. Jackie was calling him McDreamy after Dr. Shepard from Grey's Anatomy.
August 17, 2013- The doctor's preformed a craniotomy to remove the tumor. They were successful in doing so. After the surgery he did well. Made a full recovery. The only thing that upset him was that he couldn't drive for 6 months.
September 2013- He underwent radiation as a precautionary measure.
December 2013- Our father was diagnosed with Stage 1 Bladder Cancer. The tumors were removed shortly after finding them. He only requires a yearly exam and has been clean ever since.
June 2014- They found a mass in his brain again, but we later determined it was radiation necrosis that was caused by the radiation.
**Necrosis is a mass of dead cells. It takes a form of tumor, however it doesn't spread like cancer. **
October 2014- Our dad had another Grand Mal seizure. This is when his cognitive issues began.
November 2014- Febuary 2015-He started Avastin( Chemo)Treatment to treat the radiation necrosis. The necrosis shrank a little bit and stopped growing.
June 2015- He had another Grand Mal seizure, which was one of the mildest one.
October 2015- The radiation necrosis began growing again and the doctor's decided to scheduled him for a second craniotomy to resect the radiation necrosis. Two days before surgery he had another Grand Mal seizure. The surgery was postponed a few more days. This surgery did more damage than good we feel. He was transported from Wilkes- Barre to NYC.
January 2016- He suffered another Grand Mal seizure. He was not bouncing back like he had done that past seizures.
February 2016- We took him home and he began to deteriorate. He fell the one night and we couldn't get him up. He was admitted to the hospital.
March 2016- The Neurologist, Dr. Garg, convinced the Neurosurgeon to tap his brain. They performed a burrow whole and drained the fluid. Our dad saw some relief. He was talking better and able to walk better. He was transferred to the brain injury area at John Heinz Rehab, Wilkes-Barre, PA. He did remarkable there.
Aug 2016- He has his 6th Grand Mal Seizure.
October 2016- Sloan Kettering told us that there is nothing more they can do so we decided to find someplace that will help him. Off to Cleveland we went. He met with several doctors and they finally decided to try Avastin again after a tumor board meeting.
November 4, 2016-He had another Grand Mal Seizure. This makes 7 Grand Mal Seizures. He was vented 5 times to protect his airways. He seizure for about an hour to three hours until they finally give him enough meds to calm him down.
November 28, 2016- He went to Cleveland to start Avastin treatment and was told they didn't think it would be the best treatment after all. More doctors we went. Finally a Neurologist said he needs to get this drained again. After two weeks of discussing amongst themselves and MORE frustrations from us they finally decided to drain the fluid again. The plan is to drain the fluid on January 6, 2017 and put a shunt in on January 10, 2017 if he shows improvements.