Jack Johnson Health Updates for Jack

First post: Jul 17, 2016 Latest post: Jul 21, 2016
Welcome to our CaringBridge site. We've created it to post updates about Jack's progress during his course of treatment and keep friends and family updated on his condition.

In February, Jack became sick with what he thought was only a virus going around. After nearly collapsing, he was taken by ambulance to St. Nicholas ER. He soon learned that he had cancer. At first the doctors thought it was Non-Hodgkin’s Lymphoma, but that was soon dismissed. After four months of biopsies and tests, the doctors at Froedtert have narrowed it down to being a hybrid of two rare blood cancers (Interdigitating dendritic cell sarcoma and Langerhans cell histiocytosis). Since it is something they have not dealt with, there is no standard protocol to follow. After not being able to continue with chemotherapy, due to blood counts being below normal range, Jack’s spleen was removed at the end of May. The doctor stated that the normal fist size spleen had gone from the size of a football to a watermelon in just over a month’s time. Since removing the spleen in late May, this rare blood cancer has now begun to affect his liver.  At the end of June, Jack was admitted to Froedtert Hospital in Milwaukee to receive a different type of chemotherapy (Cladribine). They planned on keeping him there for a month to monitor him since the treatment is known to be hard on the liver and kidneys. 

We appreciate your thoughts and prayers for Jack and his family while he is going through this difficult time. We will attempt to update this website as often as we can with his condition so everyone can stay informed. If you have any questions, you can comment on the posts and we will answer them when we are able to. 

There is a GoFundMe page set up to raise money to help offset medical bills, travel expenses, lodging and meals since the family lives approximately 60 miles away from the hospital. You can visit the page here (https://www.gofundme.com/2b7vef4e). 

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

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