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Sep 5, 2017 Latest post:
Sep 13, 2017
When I was 24 weeks pregnant we found out the sweet little boy I was carrying had Tetralogy of Fallot (TOF). This diagnosis was terrifying, but we've been lucky - Jack is a strong little guy with a mild case of the defect. For anyone (who like us) had never heard of Tetralogy of Fallot before, it's being talked about more recently thanks to Jimmy Kimmel bravely speaking publicly about his son Billy with TOF. (Who was born on the same day as Jack! Can you believe it?!) Jimmy also had superstar athlete Shaun White on his show to talk about his experience growing up with TOF. Knowing a TOFer can become an insane Olympic athlete made things a lot more bearable for us.
More about TOF: Less than 5 in 10,000 babies have TOF, but 1 in 100 babies is born with a congenital heart defect. Before you ask - Jack's TOF is not genetic and is not linked to any other defects or health issues. He needs a hole in his heart patched and his pulmonary valve widened, then he'll be running around like any "normal" kid.
Those of you that have met Jack know that he's a very happy, otherwise healthy baby and he's been packing on the pounds like a champ. Now that he's a chubby 4-month old, it's time for him to get patched up. On Wednesday 9/6 Jack will be getting his surgery at Boston Children's Hospital, and we've setup this CaringBridge website to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.