Hunter Crum Hunter Crum OMS Warrior

First post: Feb 22, 2018 Latest post: Feb 23, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Hunter has Opsoclonus Myoclonus Syndrome ( or Dancing Eyes Dancing Feet Syndrome. These are a good set of videos as to how Hunter is right now.  It documents the truncal ataxia, the walking, the rages, fine and gross motor skills.  It is INCREDIBLY rare.  There is not enough known about it to have a cure, so this is something he will have for the rest of his life.

3 Ways OMS Can Occur

- It could have been caused by a neuroblastoma (cancer) that his body recognized.  Once it is recognized as being "foreign", the body produces B-cells that violently attack the cancer so that it is reabsorbed in the body.  Those "aggressive" B-cells do not just die off after the cancer is begins attacking the brain at the cerebellum (the part of the brain that controls your body movement) and the frontal lobe (which controls your moods).
- Idiopathic (meaning it came from a virus)
- It is a precursor to neuroblastoma (cancer) that can show up with the next few years.

CaringBridge is a nonprofit social network dedicated to helping family and friends communicate with and support loved ones during a health journey. Learn more about CaringBridge.

To interact with Hunter’s website, sign in or register today.

By registering with CaringBridge, you will join over 300,000 people a day who are supporting friends and family members.

Sign In Or Register