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Race For A New Heart
Jun 9, 2018 Latest post:
Oct 21, 2018
Welcome to our Caring Bridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. Joshua has an enlarged heart, mainly the the left ventricle that pushes blood up to the aorta the supplies oxygenated blood to the rest of the body. since it is enlarged it causes a low ejection fraction. We discovered at 5ys. old his ejection fraction was 40-45%. Normal ejection fraction is 65-70%. We observed this with Pediatric Cardiologist on a yearly basis until he was 12 and then they decided that it has been stable with his medicine that we could now go every other year. February 2018 he had his heart check up and discovered there had been a drastic change in his condition. My first born was in heart failure, his heart was severely enlarged and ejection fraction was 20%. We were told that he heart would not be able to recover from this and he would need a heart transplant very soon. We are all just devastated at this point. On Monday June 11 we will go back to Rochester for blood work and recheck, Tuesday June 12 he will have surgery to have a defibrillator put in to help until he gets a new heart. He should be placed on list sometime in July. Then we just pray and wait. And all Joshua is concerned about is playing baseball this summer. He is an amazing, loving, giving, funny and caring child who worries more about others than himself.