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8/3/2017 Latest post:
Hello! Here is our story. Since we moved back from Pa, Holden has been having nosebleeds that last a minimum of 13 hours and the last one at 29 hours. After going to Sylacauga 2 times and just being told they are required only to stop the bleeding, and Talladega 2 times- being told the same the same thing, Holden was blessed to be with one of his Godmothers in Birmingham when the last one started.
He was brought to UAB, where they realized the seriousness of a 29 hour nosebleed. They tried the normal methods of stopping it to no avail, and so they chose to do investigative surgery. Initially the results of that were that he had an illness called JNA, a benign tumor in the back of his nasopharnix area. We were blessed to get the UAB charity care insurance, and so embolism & surgery was scheduled. Initially, it looked good; then the results came back.
We had an apt on Monday, we received a call to go to the hospital and get a PET scan before the apt, so we did. When we got to the apt. poor Dr. Chow walked in the office and asked me if I have any family with me, I said no. He then asked me if I have any family to call, I said no. he then asked me into the hallway, where he very uncomfortabely stated that he had some bad news to tell me. Holden has cancer. He was unsure at that point any specifics...
So, God has blessed me with 15 years of research on cancer, so it was time to get to work. That evening, Dr. Chow called me around 9ish. he had some results back. Holden has had this for a while. It has metastasized to his lymph node, stage 3, 4, or 4a. unsure exactly. Unsure about if its in his chest, or in his groin or other places on his left side. He thinks his right side is clear but he is unsure at this moment. The cancer is rare and I'll know more Monday. Holden has a gofundme page for his meds. gas money to Dr's apts ,and for an important conference in Orlando in October of cancer specialists!!!! ANY help is appreciated infinitely! The conference is $1200 alone! ugh!