Harry Perrault

First post: Jan 31, 2022 Latest post: Feb 9, 2022
In October, Harry came home from school complaining of shortness of breath. He skipped swim practice that night to see how he felt. The next morning he texted me saying “Breathing has gotten harder and started to hurt can you pick me up and go to little clinic”. We headed to OhioHealth Urgent Care. Since Harry has asthma, I thought it could be Covid. In my mind we’d get a Covid test and figure out what was next. After a negative Covid test the Dr suggested we go to the ER. They were concerned about Harrys heart. Initially I thought this was crazy. He’s an asthmatic and we are in the middle of a pandemic. It’s got to be Covid related. Going to the ER was not in my plans. Nonetheless we headed to Nationwide Children’s. Harry got a full work up of chest X-rays, ekg and blood work. We were there for 6 hours during which time his symptoms remained. The tests all came back normal. We were discharged with instructions to follow up with a pediatric cardiologist. The next morning around 8 am I received a call from Nationwide Childrens Hospital. It was the cardiologist who reviewed Harry’s chart the night before. He wanted Harry to be seen sooner than later. He did a telephone consult and ordered an Echocardiogram for 10/26. The echocardiogram showed a possible congenital heart defect called a Partial Pulmonary Anomalous Venous Return (PAPVR). A Cardiac MRI was ordered to confirm the PAPVR. During this time Harry continued to have symptoms. We saw the Pulmonologist to rule out anything asthma related. He was so tired and his symptoms remained. Harry had the Cardiac MRI on 11/29 and the PAPVR was confirmed. His heart showed some enlargement and he had some shunting but not in the range that the Cardiologist felt warranted putting him through surgery. We were advised to follow up in 12 months for changes. This didn’t sit well with me because I had a kid with unresolved symptoms so I wanted a 2nd opinion. I reached out to a friend that works at the Cleveland Clinic to get a recommendation. Harry absolutely has a guardian angel. Before the end of the week, Harry’s test results had been received by CCF. The Dr I was referred to specializes in Congenital Heart Defects of all ages. Harry’s file was reviewed on Dec 20th with the CCF calling that morning with their results. I was in shock when they said Harry needed surgery to correct this defect. It was explained to me that at some point this will need to be fixed, so we should do it now before there is damage to his heart. Harry’s scheduled to have open heart surgery on Feb 2nd at the Cleveland Clinic. He’ll be hospitalized 3-5 days and out of school for 3 weeks. I’m asking for prayers for Harry and all that love him. I have around 3 weeks before I head to Cleveland. I’m not not sure what we’ll need but I will try to keep everyone updated.

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