May 14, 2018 Latest post:
Dec 31, 2018
We’ve decided to use this format to keep everyone updated as to what is going on with Harper’s journey.
What started out as a routine X-ray with a pediatric orthopedist due to what we thought was a knee injury or growth plate issue, landed us with a referral to the head of KU Med’s Sarcoma Center in their Cancer Center, Dr. Howard Rosenthal. We were quickly informed that what we were looking at was indeed bone cancer and that several more tests were needing to be run, including a biopsy of Harper’s left femur. In a whirlwind of two weeks between Dr. Rosenthal’s office and the Hematology/Oncology unit at Children’s Mercy, we were quickly informed that Harper does in fact have stage 2B Osteosarcoma in her distal femur (close to /above her knee). After many tests and scans, it has been determined that as of right now, this is localized to her left leg in the initial tumor, and has not spread to anywhere else in her body, praise God!! Tomorrow we now start the awful journey of aggressive chemotherapy, followed by a complete resection of her left leg in 12 weeks, followed by more chemo, likely through the end of the year and possibly then some.
We are scared for our little girl, of the side effects and of the unknown, but are beyond blessed to have the amazing team of doctors that we do working on her. We truly couldn’t be in a better place.
I will use this site to post updates of her condition, findings, feelings, needs, the whole gambit. We so appreciate you tracking this with us and showing such loving concern for our goofy, sweet, unique little girl.
Thank you from the bottom of my heart, more to come soon! In the meantime, feel free to check out the pics we uploaded to here :)