Harper Jones

First post: Aug 12, 2021 Latest post: Sep 3, 2021
Today, Harper will undergo her 3rd open-heart surgery. The Fontan (the surgery name) is last in the series of surgeries needed for children born with HLHS. Without it, she would not survive. HLHS or hypoplastic left heart syndrome is a complex and very critical congenital (present at birth) heart defect. After her first 2 surgeries Harper has been able to thrive, grow, and be a toddler. However, because of her condition her body doesn’t receive adequately oxygenated blood which results in reduced endurance during physical activity, inadequate temperature regulation and blue-ish hands and feet. The Fontan surgery will create new pathways for major blood vessels so that her body will receive fully oxygenated blood. While there is no cure for HLHS, this surgery will allow Harper to continue growing and living life.

The surgery will take approximately 3-5 hours. After, she will spend a few days in the ICU. After the ICU she will spend between 7-10 more days in the hospital. Complications from this surgery are possible which could extend her hospitalization but we will cross those bridges if/when we have to.

This caring bridge site will be updated on her condition throughout this journey. We ask that you check here first, before contacting Elise. That way she won’t have to text or call so many people with the same information. She wants her focus to be on Harper during this time.

Please send lots of good vibes and thoughts!

Thank you.

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