Harlow Grace Vlietstra

First post: Jul 29, 2020 Latest post: Sep 16, 2022
God has been intertwined in Harlow's life before we had even imagined her...2020 has been a year of curve balls, as we are all very aware of. Derek and I had planned to focus on racing triathlons and to try and grow our family next year. Well, as things progressed and were cancelled, we received this strong sense that we should try now and well it happened - fast!

We have been overjoyed ever since and have loved watching Makenzie, who is almost 3, already step into her big sister shoes. Little miss Harlow did make her presence known throughout the first trimester and some, but everything seemed to be moving forward it should be.Then on Monday, July 27th we had our 20 week ultrasound. Harlow wasn't necessarily cooperating, but we were soaking up seeing her move around. For some reason, we left with an uneasy feeling and just 3 hours later it was confirmed why.

Harlow Grace has been diagnosed with Spina Bifida with myelomeningocele seen at L4/ L5. Basically, her lower spine did not close all the way, leaving part of her spinal cord fully exposed.

We canNOT thank you enough for your continual thoughts, prayers and love as we navigate through advocating for our warrior, Harlow Grace!! Now we pray hard for God to move mountains and knit her spine back together! ❤️