Hannah Ramos Hannah infant cancer

First post: Jan 28, 2018 Latest post: Jan 29, 2018
Hannah Arlene Ramos was born on 11-19-17. 2 days after the doctors found a mass on her back at her 37 week ultrasound. Shortly after birth she was transferred to Boston Children’s Hospital where she spent 3 days in the nicu and got ultrasounds, an mri and then a biopsy of the mass. We were sent home since we didn’t know what the mass was and she was well enough to go home for Thanksgiving. We had a long week at home wondering what was on our daughters back and if it was benign or malignant.. On Wednesday 11-29, 10 days after she was born we were given the worse news in the world. Our baby has infantile rhabdomyosarcoma a cancer of her muscle on her back which is causing an abnormal curvature of her spine. We were told she’ll need 42 weeks of chemo, one every week and 1 every three weeks to see if we can shrink the mass since she’s so small and can’t handle a surgery to have it removed being that it’s so big. We were also told she needed to be put asleep to have a central access line put in the next day and we’d start her chemo after the access is set but she’d be staying overnight for this surgery and chemo. We are luckily home now and resting with our princess. We don’t like asking for help because we are a hard working family that does what we need to do to survive but, being on unpaid maternity leave sooner than expected and not having enough saved since I wasn’t able to work until delivery as originally planned and now having to take more time off to spend with my baby and helping her heal we are at our wits end. We can’t afford for us to be out of work for the 10-14 weeks that will be required. Any contribution will help. And I thank everyone for any part whether it’s sharing this or donating what you can. We will update this every chance we can. Thank you

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