Oct 14, 2020 Latest post:
May 20, 2021
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Inflicted with rare head and neck cancer that originated in the Salivary gland (submandibular gland) and traveled in ducts to lymph nodes in his neck. Sections 1,2,3,4,5 for sure. 54 of 65 nodes reviewed revealed Neoplasms (cancer) removed from neck/collar bones to jaw bones on right side. Surgery (Radical Neck Dissection - 5 hour surgery) was on 9/15. PostOp - No pain next day and should have been heading home but as an overachiever, was one of 3% to spring a Chyle leak in my neck. So one extra night and more time with healing drain plug in neck and a no fat diet for a week. Chyle leak is a fat leak in the neck. You eat fatty foods and drinks and it drains down your right side in your nodes.
Phase 2 Radiation (start 10/12) to “broom up” anything missed in the surgery and to activate chemo treatments via radiation to go out and break up and floater cells that may have drifted off. Phase 3 is Chemo (start 10/15) concurrently with Radiation. It’s a qty 3-5 cocktail low dose 5 hour treatment once a week. After that, Once every 3 weeks for 6-12 months one cocktail for immunotherapy long term.
Would like to write the story ending right now for you that “Handyman Harding Kicks C”.
I’m my opinion, There is no plan B. Head up, positive attitude, forge my path to recovery and my journey to share so others may also have a path to follow. My case is Rare so there isn’t a lot of info in the books I’m told so we are also participating in sharing what they learn from my case, experience and trials to help others. That’s fulfilling for sure. Some Collaborance is happening with Mayo and MD Anderson of Texas. I think that means the most to me in this journey so others can save agony, pain and grief and have a better shot at following me to victory with less trials.
Confirmed 10/29 that my immunotherapy (Chemo) will continue on for 12 months after I leave here. Then a 3 month check in to see how things look post chemo and rad to see if it worked. I am not a textbook situation so we (the team at Mayo and myself) are working off some studies by MD Anderson of Texas (another wonderful hospital). I really love the wonderful staff and knowledge of the folks at Mayo. I trust in them and MD Anderson and believe between the two of them they could want nothing further than positive lasting results so maybe one day there will be some textbooks for this. I tell ya I feel energetic and motivated when I am at Mayo. I think it’s the staff. They all make me feel like I am succeeding and are truly trying to help you and pulling for you. They are always assisting wherever and whenever they can.
Will do check up on how it worked 3 months from 11/20/20. 🤞
Much love to all who want to check in and follow.
VIEWER DISCRETION ADVISED - SOME PHOTOS MAY NOT BE SUITABLE FOR FAINT OF HEART AT SOME POINT AS I BUILD THIS. 🙂