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Jan 11, 2019 Latest post:
Jun 30, 2020
Having a Caring Bridge for one of my children has never been on my bucket list. But it true kid form, they love to throw us curveballs.
Haakyn hasn't been feeling well since Christmas. His activity seemed to be the same as usual, he was just really pale. But who can blame a kid during the holidays with all the excitement and 9 cousins under 10 to run around and act crazy with. On New Years, he spiked a fever and was complaining of lower back pain. We brought him in and were told it was constipation. Miralax two times a day seemed to be doing the job but the color was not returning to his face. Yesterday (Wednesday, January 9th) I brought him in to be seen completely expecting for them to tell me to ride it out, it's a virus. I mean at this point he had no symptoms except a little lower back pain and was pale.....and he's a redhead. After taking an Xray of his abdomen they immediately sent us to Children's of Minnesota via the ER.
It is with an absolute broken heart that we tell you that they have found a tumor on his Kidney, which is cancerous. Hearing your child's name and the C word is the most earth-shaking thing a parent will ever hear, I'm convinced. My worst nightmare was playing out minute by minute in front of my eyes as we were pushed from room to room, test to test and Dr. to Doctor. Everything was happening so quickly yet in slow motion. Last night at 11pm we were admitted and the first person to great us was the Pediatric Oncologist on the Oncology floor. An hour long question session began with a CAT scan getting scheduled for 2:30a.m. Yes, that's right, fast and furious. We tried to catch some Zzz'a before we were woken up for our test. At noon today, Haakyn was at 8 procedures/tests in less than 24 hours.
I can't get a second to hardly fire off a text. This seems to be the best way to communicate at this point. Children's keeps you moving, so much that you don't have time to grieve or think of the "what-if's" and for that I'm thankful. We will not know what stage his cancer is in until they remove the tumor and get a closer look. Today, the results from his CAT scan came back that the tumor was the size of a Volleyball. He will go into surgery tomorrow at 1130a tomorrow morning (Friday, January 11th) where they will open him up from side to side an inch above the belly button and remove the kidney, tumor and as many as lymph nodes that they can get without causing damage. He will recover for 4-5 days and then get scheduled for a second surgery to put a pic line in to make Chemotherapy treatments through. This makes the Chemo more direct into his system and more comfortable for him.
Our world has been rocked and we are broken. We often say, "it takes a village" and now we need the support of all of our friends, family and "village" to lift Haakyn up in prayer. He has a tough and long road ahead of him and we are going to need every ounce of positivity & prayer we can get to help push us through! We pray that the surgeons guide that tumor out of his little body without complications. This is a daunting path that we are on. Strength and Courage will be needed every day, not only by Haak but by all of us. We are prepared to fight like HELL for Haak!