Gregory Madura

First post: 8/29/2016 Latest post: 9/1/2016
Greg has regularly gone for his aneurysm screenings and after 2 normal ones we thought we were in the clear.  Well a few months ago he started having exertional headaches.  We eventually ended up at Vanderbilt Medical Center, and heard what many of you have heard.  That his family history is definitely something  they have not encountered before.  We were reassured that with a normal scan 3 years ago  it would be highly unlikely for him to have any new problems.  They managed to squeeze him in for a scan the same day and we left feeling like we had probably just spent alot of money to find out he was healthy.  

Before we were even halfway home the doctor called and said Greg had an aneurysm.  You could hear the disbelief in his voice.  It was 5mm and in the left MCA.  It was broad based and would be difficult to coil and the coiling would very likely fail in the future. A clipping would have a less than 1% chance of failing in the future.  Greg opted for clipping.  

Greg did not want to worry others so he did not want anyone to know until surgery had started.  
This morning, August 29, at 5:30 a.m. he checked into Vanderbilt Medical Center in Tennessee for surgery.  They expect the surgery to take 4-5 hours and then he will go to the neurosurgery ICU. Vanderbilt has the largest dedicated neurosurgery ICU in the country so he is in good hands.  Greg has requested no phone calls for a few days, though when he feels up to it he does have his ipad to check messages. 

I will update you when he is out of surgery.  

As an aside, Aaron has not been screened, but Anna has.  About a week before Greg's appointment Aaron was set up for a scan to be done in a few weeks.  The neurologist said there was really no good information out there as our family was so unique.  She did say that if this were her child she would scan once in early childhood when they were old enough to lie still and again early adulthood.  This was before Greg's diagnosis.  Now the situation has changed and she said she would discuss further testing after Aaron's MRA.  Her advice was that for our family any child with a second degree relative with an aneurysm should consider screening and those with a first degree relative should really consider screening.  First degree being parents, siblings, and children.  Second degree being cousin, aunt/uncle, or grandparent.  So almost everyone in the family falls into one of these categories.

Please ignore the beg-a-thon postings this site has.  We are not seeking donations.  It is something that the website is doing and not us.  This site is supported by Vanderbilt for its patients and we chose to post here because many people are not on facebook and will not see our postings there, and I do not want to fuss with compiling 100+ email addresses to write an email.

Will keep you updated-Angie  

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