Caiyden Grigsby Gray is the New Pink- CG

First post: Oct 2, 2019 Latest post: May 22, 2020
Welcome to our CaringBridge, Caiyden's story isn't much but isn't one any parent or teenager wants to go through. Being diagnosed with a brain tumor is not only hard on you as a parent but is extremely difficult on the teenager. The amount of insecurity, secrecy, fear that they face and try/ do hide from you is overwhelming. It is so hard as a parent , because you do not want your child to suffer or hurt at all. Our fight began with a simple fall at school, that led to a Subarachnoid hemorrhage that found the mass. We then began 18 mo ths of watch amd wait and MRIs every 3 months. The tumor began to change, I reached out for a 2nd opinion because I got tired of the watch and wait because she was getting worse. This lead is to Cincinnati Children's and a new diagnosis of the tumor type. But yet again we got held up until we got a 3rd opinion from Dr.Boop at Le Bonheur Children's. We were scheduled for surgery after Christmas. Then Caiyden stopped breathing Christmas Eve, the worst day of our lives. I am a nurse, but I never wanted to have to do CPR on my own child. Christmas 2019 will forever be the worst Christmas ever as we celebrated somewhat in the hospital and then in the middle of January when we final got back home but it just was never Christmas. She had a Right Temporal Craniotomy on January 3rd, 2020. Final diagnosis was Oligiodendroglioma grade 2 IDH1 mutation and Ip/19-Q deletion we have now moved on the St.Judes and she has become a patient there. Do to the type of brain tumor type and mutations because they can grow back. Brain Tumor Research needs all the help they can get. Please pray amd spread the word.

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