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4/15/2016 Latest post:
Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.
Grant's been a miracle child in his everyday happy and silly attitude, when he has struggled with health since day 1. Some things progressed and some errors delayed things, but Mayo specialists feel they have found a label in Polymerase 3 leukodystrophy, an incredibly rare progressive disease. We are praying for just about anything else to arise.
I strongly believe God will not allow me to bury two children. So, I ask you, as you read- pray. Pray that my spunky, hilarious, incredibly strong boy has anything but this, and that he will progress in nothing but a positive and fruitful direction - happy, healthy, and always special.