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Grace's Medical Journey
11/9/2016 Latest post:
Welcome to our CaringBridge website. We appreciate your support and words of hope and encouragement. It has been a difficult 2 years filled with constant doctor appointments, traveling to other states hoping for a diagnosis, ER visits, functional medicine appointments, biofeedback appointments and constant research. We are so thankful to be in this world of social media today which has allowed us to research and connect with others who are in the same boat. This is a truly debilitating illness which is so hard to diagnose or explain because on the outside Grace does not look sick. On the inside it is constant pain everyday. It is a nightmare to watch your child struggle day after day when there is nothing you can do and there is nothing that can be given to ease the pain. We are so thankful for those who have supported us even though we couldn't fully explain the ailment because there wasn't a clear diagnosis. Grace can't wait to get back into life and be the exuberant kid she once was who loves school, golf, running and nature. She is on her way. Grace's story of her medical journey is below. Thanks for visiting!