Grace Jones

First post: Mar 8, 2018 Latest post: Mar 19, 2018
This summer, we were thrilled to learn we were expecting a little sibling for Josie! At our first trimester ultrasound screen some abnormalities led us to do to further testing. In September, 14 weeks into the pregnancy, Gracie was diagnosed with a rare, life-threatening birth defect called a congenital diaphragmatic hernia (CDH). Ultrasound showed a hole in Gracie’s diaphragm. This hole has allowed her abdominal organs to push up into her chest cavity. With additional organs in the thorax, Gracie's chest has not had room for adequate lung growth. We have been preparing for Grace's birth, along with a surgical repair of her diaphragm, and a substantial NICU stay at Children's Hospital in Minneapolis since her diagnosis. We are grateful for the guidance and expertise of the incredible providers at Children's.  

Thank you to our dear family and friends for visiting Gracie's CaringBridge site and for your unwavering support, love, and prayers.  We appreciate all your messages of support! Please continue to check back here for updates on Gracie's progress. 

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