Grace Jones

First post: Mar 8, 2018 Latest post: Mar 13, 2021
Gracie was born on March 7, 2018 with a congenital diaphragmatic hernia (CDH) and congenital heart defect and spent her first 9 months of life in the NICU at Children’s Hospital in Minneapolis. Gracie was placed on ECMO life support for 9 days shortly after her birth, has endured 4 major surgical repairs on her diaphragm and open heart surgery, numerous smaller surgical procedures, and continues to battle pulmonary hypertension.

On December 17, 2018 Gracie was finally discharged from Children’s Hospital and welcomed HOME by her big Sister Josie! We continue to care for Gracie’s many medical needs at home. Gracie had her cranial synostosis surgery on February 19.  Surgery was successful, but Gracie aspirated from medication withdrawal and was diagnosed with pneumonia. She also contracted influenza, prolonging her hospital stay to over two months. On April 25, 2019, Gracie finally came home again! We have been busy making up for lost time since Gracie's return. 

Gracie is a feisty, brave fireball whose adorably sweet and curious personality has won the hearts of her family, nurses, doctors, therapists,  NICU staff, and a massive community of supporters across the country and around the world. Gracie’s vibrant zest for life is an inspiration to us all, and we are so grateful to have her.  She is brave, tough, beautiful, and an incredible blessing full of God’s love. 

We are grateful for the guidance and expertise of the incredible providers, especially Gracie’s guardian angel nurses, at Children's Hospital Minneapolis. 

Thank you to our dear family and friends for visiting Gracie's CaringBridge site and for your unwavering support, love, and prayers.  We appreciate all your messages of support! Please continue to check back here for updates on Gracie's progress. 

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