May 20, 2018 Latest post:
20 hours ago
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. My journey with this brain cancer began April 9th when a mass was detected around my pituitary gland (which is in my brain). The next few weeks consisted of...blood work, neuro-opthamology evaluations, a bone scan, a pet scan, a spinal tap, and 2 more MRI's that were 2 hours each. The diagnosis process also involved meetings with multiple neuro surgeons and my amazing neuro-oncologist Dr. Harini Rao and her side kick Nurse Kim (also known as Nurse KimmyPants). The official clinical diagnosis was made on May 2: Germ Cell Brain Tumor known as Germinoma, a form of brain cancer. May 4th I had another spinal tap and a got a PICC line in so I don't need as many needles to get my blood checked. I began my journey to beat this on May 7 with my first round of chemotherapy. I will receive my treatments at The Valerie Fund at Newark Beth Israel Hospital. They have a great team!
I will do 3 days a month of chemo for 4 months. I will then do 1 month of radiation (we have not met with the radiation doctor yet so I am not sure of what those specifics will be yet). During my first day of chemotherapy, I met a very nice man. His name is Bob. Just so y'all know, he is my IV pole and Otto my blood pressure thing, he is like my massager as we like to call him!!!!!!!
Fighting the fight each day with a smile. I am so thankful for all of the support I have from everyone. It helps me stay strong. Thank you for your encouragement and love. My family and I are overwhelmed at the thoughtfulness that has been shown for all of us. We are grateful and so appreciative. We cannot express our thanks enough. Please continue to send good vibes so I stay strong and fierce to fight. Thank you!