Jun 16, 2018 Latest post:
Aug 27, 2018
I start this period in August, 2015. The reason is something happened, hepatic encephalitis. While I had things go wrong before this had a real change that reduced my balance (a couple of years later still dealing with issues). I have regained some of my stamina and leg strength.
I have cirrhos of the liver. We have not figured the cause out. This means I will need a liver transplant. Also, I have liver cancer. There is a procedure called TACE for treating liver cancer. After the procedure I get a follow up scan to check status the liver cancer. At this point I started to add or change doctors to USC Keck. My first TACE was done outside of Keck. The first procedure took 2 hours. When I did my follow up scan Keck did another TACE procedure. This took 6 hours. In the follow up scan I was cancer free. Liver cancer can be treated by TACE. The only cure is the transplant. I need a liver from someone with blood type O. The fact that other blood types accept O means that a lot of people could use that transplant.
Keck formed up a transplant team for me. I am now registered on a transplant list. They have been checking me out, to be sure I am ready for the transplant. We monitor a number of things every three months:
Liver cancer - If I have a problem we would do another TACE procedure. Blood for clots - I will be on a blood thinner for a long time to help prevent clots. Pulmonary pressure - I will be taking a pill to help with this. The first drug had too high of a copay, they have not given me a new option yet. Glaucoma
The cirrhosis of the liver is dealt with working to clear out toxins from my blood. I take a diuretic every day to keep from retaining water. The only cure is the transplant.
hepatic encephalitic - I have had one episode and I hit a coma type my first time out. This is one that scared everyone around me. I was not scared because I was so out of things I did not know what was happening. My nephew, Ian, really came through. He was there as long as I was in the hospital - he had experience because he went through it with his dad. He is only one I remember from hospital besides Pat and Christina. Anyone who visited did help. Patrick said I lite up when a visitor came. So thank you!
It is years later and I still do not have my stamina and balance back. I am going to start another period of physical therapy, June 2018.
I came in for a checkup and to get a new prescription. On my second visit my ophthalmologist told me I had glaucoma. Damage from glaucoma cannot be fixed, but it can be treated to stop further damage.
My dermatologist has me doing a cream on my skin and Light Chamber three times a week as treatment. He said that I cannot take drugs to treat it, because my body is messed up and I am taking many other drugs.