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Frank's journey started in 2012 when a sudden heart episode was diagnosed as a genetic related disorder of the skeletal and heart muscle. Up to that point, Frank had lived a completely normal life and had no idea he was born with a genetic condition, but over time the illness had affected his heart function. He was diagnosed with restrictive cardiomyopathy, a condition where the heart can't fill properly before pumping. Cardiomyopathy is the leading cause of heart transplantation. Over the next five years, medications, a pacemaker, defibrillator and various heart procedures stabilized Frank's symptoms as he continued to live a relatively normal life. In 2018 Frank's heart function worsened and  he was quickly evaluated and approved for a heart transplant. In November 2018 he joined the waiting list for a heart transplant through Brigham and Women's Hospital in Boston. Frank will continue to be followed closely by the Heart Failure team at Brigham and Women's as he waits for a donor heart to become available. We are using this site to keep family and friends updated about Frank's journey to a new heart. You can sign up to receive automatic text or email updates as  information becomes available. We appreciate your support and words of encouragement. Thank you for visiting.