Mar 15, 2020 Latest post:
Apr 27, 2020
Welcome to my CaringBridge website. I am using it to keep family and friends updated in one place. Thank you for visiting. I am realizing that this website doesn’t really give any background to those of you who did not hear/know of my condition to begin with. I have what is now known as an “MPN” disorder (myeloproliferative neoplasm disorder). What used to be thought of as three different diseases is now understood to be three different manifestations of a single gene anomaly. I have now cycled through all three. I began with essential thrombocytosis (overproduction of platelets), then for years had polycythemia vera (overproduction of red cells, hemoglobin, and/or platelets), and for the last two years have suffered with myelofibrosis (underproduction of blood cells due to scarring of the bone marrow). Myelofibrosis (MF) causes anemia, hot flashes, night sweats, and an enlarged spleen, as that organ tries to produce the blood cells the bone marrow cannot. So treatment is: Step 1: removal of spleen. Step 2: chemo to wipe out the remaining bone marrow Step 3: bone marrow transplant
I have completed step 1, and am awaiting step 2 chemo.
I appreciate your support and words of hope and encouragement.