Evelyn has Cystic Fibrosis. In 2005 it was discovered that Evelyn has Cirrhosis CF Liver Disease. Her liver disease has progressed and she received a liver transplant. Evelyn has a younger brother Joel, and two younger sisters, Eden and Elsie. Elsie also has Cystic Fibrosis and has liver disease as well.
Evelyn has complications from her Cystic Fibrosis; She had Biliary Cirrhosis CF Liver disease. Received her new liver Sept 7th 2007. She has Esophageal Varices. Portal HypertensionCF; microscopic colitis.A history of CF sinus disease. She has CF Related Diabetes.Pancreatic insufficiency. Her ammonia levels were rising despite our efforts to keep her on a low protein diet. This has now been resolved because of her transplant. Evelyn has been in and out of the hospital for tune ups most of 2005 and 2006. She has had CMV and now EBV since transplant. She has EBV hepatitis. Evelyn loves cats, dogs, horses and all farm animals. She went to Freedom Farm for Theraputic riding. Evelyn's favorite band is the Barlow Girls. Evelyn loves music, and all arts. Evelyn is very creative and is very good at problem solving. We envision her someday owning and operating her own farm.
It is very busy at the Day home. Evelyn vests ( for 30 min) with her four nebs at least twice a day, sometimes three. She is on over twenty different medications and takes over 40 pills a day. She checks her blood sugars often, counts carbs and takes insulin shots through-out the day. Her little sister Elsie does her vest treatments with her two nebs at least twice a day too. We visit any one of Evelyn's doctors weekly and blood draws weekly. Evelyn and Elsie have to take enzymes every time they eat so they can digest their food. We have been asked how we get through this.......
......... Faith! (Thy will be done.) We are proud of our Catholic Faith, and it is through the grace of God, that we continue on.
I need to give credit where credit is due. We have incredible Doctors.
We our blessed to have our family and friends and the Delano Catholic Community. We are grateful to General Mills for the support they have given us through out these difficult years. They are a wonderful company to work for.
Thank you for your support and prayers, it does not go unappreciated.