Thanks so much for checking in here and riding along with us on this adventure. Saddle up!
It’s been 12 years since Eric was diagnosed with Young Onset Parkinson’s Disease in 2006, and the medications are no longer sufficiently effective. In addition there are increasingly serious side effects from them. So...he’s taking the plunge and having DBS surgery (Deep Brain Stimulation) which is like installing a pacemaker for the brain. The process includes 3 surgeries: April 20th, May 14th, + May 25th, all at Mt. Sinai Hospital in New York.
As many wonderful folks have offered to help in different ways, it seemed easier to keep most of the information in one place.
With love, Eric and Jenny
FYI-No need to donate! (Unless you r e a l l y want to; that's just a Caring Bridge thing.)
F May 25 - 8 am- 3RD SURGERY -batteries+controllers put in
June 1st -Post op appt
June 8th -Post op appt
June ? -DBS programming begins. Yeah baby!!!! Bionic man here we come!
WAYS TO HELP:
•Rides to and from the surgeries and post-op appointments in NYC
•Rides locally as Eric can't drive for 2 weeks after each surgery
•Dinners if you're culinarily inclined :)
We will be posting information re dates in the planner (LINK HERE: https://www.caringbridge.org/visit/ericremole/planner
The best explanation of the DBS process that Eric has found: http://www.parkinson.org/sites/default/files/Guide_to_DBS_Stimulation_Therapy.pdf
VIDEO ON DBS SURGERY (with Eric's surgeon, Brian Kopell) (Warning: it does include video taken during the surgery so there is some blood, etc. but nothing too excessive): https://www.youtube.com/watch?v=MEBdXbZ5CDM