Emmett Dieleman Emmett's Health Journey

First post: Jan 12, 2019 Latest post: Jun 25, 2019
Welcome to Emmett's CaringBridge page. We are using it to keep family and friends updated in one place. We appreciate your prayers, support, and words of hope and encouragement during this time.  Our little Emmett was born slightly premature and spent a total of 6 weeks in NICU while many doctors tried figuring out what was causing his various symptoms.  Many more weeks of transfusions, various hospital admissions, and new symptoms presenting themselves led his team of specialists down the right path of figuring out his diagnosis. After going through genetics testing, it was revealed Emmett was born with a very rare genetic disorder called WDR1. This affects the development and function of platelets and also neutrophils; a type of white blood cell essential to the immune system.  The plan is set in place for Emmett to receive a bone marrow transplant at this time. We are lucky to have found a very good match for him and are hopeful this will start him on a road to a normal life with a working immune system. In the meantime he is being treated with many different medications to keep him healthy and strong going into this coming week.